List of Resources for Canadian Caregivers of Individuals with FASD

Our team has curated a list of resources that provide information about FASD and how to best support a loved one with FASD. Explore these resources by clicking the links below.

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• CanFASD
  (Canada fasd research network website)
  
  

• KnowFASD
  (informational website)
  
  

• Talking to your children about an FASD diagnosis
  (PDF)
  
  

• Foundations in FASD
  (free online course)
  
  

• I am a Caregiver for a Person with FASD
  (pdf guide)
  
  

• I am a Caregiver!
  (one pager)
  
  

• Loss, Grief, and FASD
  (YouTube)
  
  

• What it Takes: Supporting Loved Ones with FASD (YouTube)
  
  

• Why is FASD diagnosis important?
  (PDF)
  
  

• Towards Healthy Outcomes for Individuals with FASD
  (webpage, publication)

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Articles: Caregivers of Children with FASD

Skorka, K., McBryde, C., Copley, J., Meredith, P. J., & Reid, N. (2020). Experiences of children with fetal alcohol spectrum disorder and their families: A critical review. Alcoholism: Clinical and Experimental Research, 44(6), 1174-1188. 

Reid, N., & Moritz, K. M. (2020). Caregiver and family quality of life for children with fetal alcohol spectrum disorder. Research in Developmental Disabilities, 94.

Kautz, C., Parr, J., & Petrenko, C. L. M. (2020). Self-care in caregivers with FASD: How do caregivers care for themselves, and what are the benefits and obstacles for doing so? Research in Developmental Disabilities, 99.

Doak, J., Katsikitis, M., Webster, H., & Wood, A. (2019). A fetal alcohol spectrum disorder diagnostic service and beyond: Outcomes for families. Research in Developmental Disabilities, 93. 

Brown, J., Kapasi, A., Nowicki, E., & Cleversey, K. (2019). Expectations of youth with fetal alcohol spectrum disorder in adulthood: Caregiver perspectives. Journal on Developmental Disabilities, 24(2), 30-42. 

Gibbs, A. (2019). An evidence-based training and support course for caregivers of children with foetal alcohol spectrum disorder (FASD) in New Zealand. Advances in Dual Diagnosis, 12(1/2), 73-84. 

Pepper, J., Watson, S., & Coons-Harding, K. D. (2019). "Well where's he supposed to live?" - Experiences of adoptive parents of emerging adult children with FASD in Ontario. Journal on Developmental Disabilities, 24(1), 66-80.

Petrenko, C. L. M., Alto, M. E., Hart, A. R., Freeze, S. M., & Cole, L. L. (2019). “I’m Doing My Part, I Just Need Help From the Community”: Intervention Implications of Foster and Adoptive Parents’ Experiences Raising Children and Young Adults With FASD. Journal of Family Nursing, 25(2), 314-347. 

Reid, N., & Moritz, K. M. (2019). Caregiver and family quality of life for children with fetal alcohol spectrum disorder. Research in Developmental Disabilities, 94, 103478. 

Thomas, R. (2019). Exploring the experiences of birth mothers whose children have been diagnosed with fetal alcohol spectrum disorders: a qualitative study. Advances in Dual Diagnosis, 12(1/2), 27-35. 

Cleversey, K., Brown, J., & Kapasi, A. (2018). Educational Services for Youth with Fetal Alcohol Spectrum Disorder: Caregivers' Perspectives. International Journal of Mental Health and Addiction, 16(5), 1156-1173. 

Coons, K. D., Watson, S. L., Yantzi, N. M., & Schinke, R. J. (2018). Adaptation in families raising children with fetal alcohol spectrum disorder. Part II: What would help. Journal of Intellectual & Developmental Disability, 43(2), 137-151. 

Domeij, H., Fahlstrom, G., Bertilsson, G., Hultcrantz, M., Munthe-Kaas, H., Gordh, C. N., & Helgesson, G. (2018). Experiences of living with fetal alcohol spectrum disorders: a systematic review and synthesis of qualitative data. Developmental Medicine & Child Neurology, 60(8), 741-752. 

Pepper, J., Coons-Harding, K. D., Bibr, C., & Watson, S. (2018). Waving a Magic Wand: Supports for Families Raising School-Aged Children with Autism Spectrum Disorder and Fetal Alcohol Spectrum Disorder in Ontario. Journal of Fetal Alcohol Spectrum Risk and Prevention, 1(1), E2-E16. 

Brown, J., Kapasi, A., Nowicki, E., Cleversey, K., & Salahadin, A. (2017). Caregivers of Youth with a Fetal Alcohol Spectrum Disorder: Hopes for Them as Adults. Advances in Neurodevelopmental Disorders, 1, 230-239. 

Chamberlain, K., Reid, N., Warner, J., Shelton, D., & Dawe, S. (2017). A qualitative evaluation of caregivers' experiences, understanding and outcomes following diagnosis of FASD. Research in Developmental Disabilities, 63, 99-106. 

Cleversey, K., Brown, J., & Kapasi, A. (2017). Educating adolescents with fetal alcohol spectrum disorder: Caregiver support needs. Journal of Child and Family Studies, 26, 2843-2851.

Kapasi, A., & Brown, J. (2017). Strengths of caregivers raising a child with foetal alcohol spectrum disorder. Child & Family Social Work, 22(2), 721-730. 

Petrenko, C. L. M., Pandolfino, M. E., & Robinson, L. K. (2017). Findings from the Families on Track Intervention Pilot Trial for Children with Fetal Alcohol Spectrum Disorders and Their Families. Alcoholism: Clinical and Experimental Research, 41(7), 1340-1351. 

Reid, N., Dawe, S., Harnett, P., Shelton, D., Hutton, L., & O'Callaghan, F. (2017). Feasibility study of a family-focused intervention to improve outcomes for children with FASD. Research in Developmental Disabilities, 67, 34-46. 

Bobbitt, S. A., Baugh, L. A., Andrew, G. H., Cook, J. L., Green, C. R., Pei, J. R., & Rasmussen, C. R. (2016). Caregiver needs and stress in caring for individuals with fetal alcohol spectrum disorder. Research in Developmental Disabilities, 55, 100-113. 

Coons, K. D., Watson, S. L., Schinke, R. J., & Yantzi, N. M. (2016). Adaptation in families raising children with fetal alcohol spectrum disorder. Part I: What has helped. Journal of Intellectual & Developmental Disability, 41(2), 150-165.